hrp0089p1-p225 | Sex Differentiation, Gonads and Gynaecology or Sex Endocrinology P1 | ESPE2018

Living with Clitoromegaly: Aqualitative Interview Study of Parent’s Responses to Clitoromegaly in Congenital Adrenal Hyperplasia (CAH) with or Without Appearance Altering Surgery

Alderson Julie , Nicoll Nicky , Thornton Maia , Jones Julie , Skae Mars , Crowne Elizabeth

Controversy continues regarding surgery in infancy to address atypical genitalia in girls with CAH and other Disorders of Sex Development. There is no consensus to surgical approach. Interest in outcomes of the range of surgical and non-surgical interventions for genital diversity is growing. It is widely acknowledged that the multi-professional management to promote long term psychosocial adaptation of the child based partly on confident parenting is essential. We conducted a...

hrp0089p1-p226 | Sex Differentiation, Gonads and Gynaecology or Sex Endocrinology P1 | ESPE2018

‘You Can Put Ideas into Their Heads’: Parental Concerns about Children’s Participation in DSD Research

Alderson Julie , Nicoll Nicky , Thornton Maia , Jones Julie , Skae Mars , Crowne Elizabeth

It is acknowledged that children should collaborate in research about their health conditions, and DSD research has been criticised for promoting views of parents and health professionals. However parents are concerned about professionals talking to children about sensitive subjects including fertility and sexual activity. Children may have little experience of talking about their sex development. This makes direct research involving children with DSD particularly challenging....